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My Single Mom Life: Up not cut.

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Up not cut.

It was a very long, very quiet ride out there, I am still angry and hurt, tired of talking to people who refuse to listen, and so it was a very uncomfortable ride.
We got there and they had me fill out a bunch of paperwork, some were of the typical medical questions, but this is a drug rehab treatment center, they do in house and outpatient programs, and so 3 pages of questions that are so so not me and my situation, were horribly degrading to even have to answer.
Things like do I use needles for drugs, share needles, have I ever had sex for money or drugs, sex with an at risk person for money or drugs, just a lot of really horrible things that I have never, would never do.
I understand though that there are addicts out there who do those things, but none of it applies to me, not even in the slightest, so it was very hard to sit there and answer those questions without wanting to scream.

They called my name and I went in and spoke with the counselor/therapist, whatever they are called, and it went much better than I expected.
She still gave me the higher power speech, but once I told her that I was an atheist and refused to rely on any type of imaginary power to help me, she dropped the subject.

I told her everything that has been going on, about all of the surgeries, how much titanium is inside of me, what the original plan was, and where I'm at now that the surgery is canceled.
She listened, she just straight up listened.
She asked me a few questions here and there, like what are my meds, how often, do they work etc, and I told her everything that I am prescribed to take, how often I am supposed to take it, and that yes, I have had to double up on bad days and rainy days, and she said to me that my meds don't need to be cut, not at all, instead, they need to be upped.
She said if I'm having to double up, then they obviously aren't working as well anymore, and they need to be upped or something else needs to be tried, but stopping the medication for me and my situation was simply not even an option on the table, and she said it was ridiculous if anyone thought otherwise.

We talked about my pain manager doctor, I told her that this coming appointment will be exactly the 4th time I am seeing him, (I was switched from 1 pain doc to another because my 1st pain doc was a rehab specialist, and I am long term pain care) and he knows none of what is going on other than the surgery was canceled.
When I started seeing him, we were a go for surgery, so he kept me at the pain med doses I was at because I was going to be having another surgery.
By law, you can only see a pain manager once every 30 days no matter what.
It doesn't matter if you run out, lose them, or somebody steals them, the law is the law, so even if I called him up and told him what was going on, by law, I still cannot go in and see him, so I've had to deal with the cancellation of my surgery and the depression on my own since June 10th -12th when the surgery was canceled, it's been exactly 3 and a half weeks since the cancellation and my last appointment with him which was before the surgery was canceled.
When it got canceled, I had to call his office and tell them that I would be needing a July appointment after all, (surgery was scheduled for June 29th) so they scheduled me for 4 weeks out, which is July 14th.
He cannot see me any sooner by law, so yeah, all of this has been on my shoulders to try and cope with.
I told her that as soon as I saw myself starting to feel really bad, get really depressed, that I called his office and asked for extra time with him at that appointment because I need to speak with him about my meds and the depression, so they booked me for a longer appointment.
I was already on top of what needed to be done, I had the ball rolling, so all of this, yeah, just not good, it just added to the pile of crap I was already feeling and trying so hard to deal with.

She said that our plan of action was actually pretty simple, I would start going there once a week and talking with the therapist, they would work with me and my pain doc to increase my meds, put me on an antidepressant that will work with the meds that I take, and just have an hour a week to talk to someone who will just sit and listen to how I feel.
No one will be judging me, putting me down, telling me what I should or shouldn't be doing, and she said that given my circumstances, it's pretty amazing that I didn't fall apart much sooner.
She didn't judge me for anything, for any of the mistakes I've made over these years, she said that no one else will ever know what my life is like, but if people don't walk a mile in my shoes, they really have no place to judge.
It was so nice to hear that, to have someone at least try to understand how I feel and to not judge me for this screwed up life that I live but never asked for.

Quite a few people have come forward and offered their support, their friendship, and their understanding in all of this, and I thank all of you so much for that, I really needed that.
No, they don't know what it's like, but they didn't judge me either, they know that this situation isn't something I asked for, they know I hate it, and they know how bad I wish it wasn't like this, but they simply offered their support, their friendship, and a hug to let me know that I'm not fighting this alone.
All I needed was to be heard, to be listened to, for someone, anyone, to just shut up and listen to what was going on, what the plan in place was, and to just try and be patient while I worked through this with the help of my doctor who has to follow the laws.

I feel a lot better knowing that once a week I can go talk to someone who has a medical background, who deals with this stuff on a daily basis, who will listen to me, help me in any way that they can, who will not judge me, and help me work through all of the guilt, which honestly, I shouldn't be carrying alone.
There were people who promised to help after the surgeries, promised to take care of the teens, help me once I came home, and they never did, so the teens had to help me, they had to do it all because those promises got broken.
I needed the help, the teens should have never had to do so much, but they did, so I carry all of that guilt around with me all of the time, and it kills me inside to hear my sons tell me that these past years have sucked so much for them and it wasn't fair that they had to do it all, and they hate me for it.
I know that, I so so know that, and no, it wasn't fair, but what was I supposed to do?!
I had no one, the people who promised to help didn't, I didn't have anyone else, the teens didn't have anyone else, it was all on us to deal with, and I am so so so sorry that they had to do it all, so sorry.
I am so sorry.
I really wish it could have been different, I tried, I planned, people promised, I should have found others to help but I trusted that those promises would be kept, and when they didn't, it wasn't fair, and I am so so sorry, you have no idea how sorry I am that the teens had to do it all, just so so sorry.

The teens aren't home and won't be coming home for a few more days, and that's ok.
It's giving them time away from all of this, it's giving me time alone, a huge break from having to try and hold it together, I can just be alone and cry as I need to without people freaking out and thinking I'm going to do something stupid.
I don't know how the therapist's plan of upping my meds is going to fly in the face of the ultimatum I was handed, but I'm going to follow what the doctors tell me to do, it's what I need to do to be healthy and alive, and not in pain.
If what the doctors are going to do isn't ok with the ultimatum, there's nothing that I can do.
I've accepted that.
I love my sons more than anything, I would do anything for them, I would lay down my life for them, but I'm going to follow the doctors, it's what has to be done, it's what's right to do, and people may not understand that, they may not understand chronic pain and that even my surgeon has said that there is no hope for me, not for the foreseeable future anyway, and that I will be on pain meds for the rest of my life, it's what it is and they can either accept that and try to work with me or they can't.
It will hurt, it will hurt so so much, but my doctors have been saying this for a long time, and now the therapists are saying it too, going off the meds is not an option, it's not even being discussed.
I'm going to follow the new plan, talk to the therapist who will listen and not judge me, and do what I have to do to be out of pain and try to get my life back, well as much of a life as I can have being stuck like this.
I'm grieving for the loss of the rest of my life.
I will be stuck like this, in pain like this, for the rest of my life.
I am a prisoner in my home because of my body, I'm never going to have a normal life again.
Going out, going to the movies, trying to do fun things, eating in restaurant chairs, walking around the mall or a store, trying to find or have a relationship, all of those things cause extreme pain, so yeah, I'm grieving for the loss of a normal life and I need people to let me do that, to let me work through those feelings of loss, to try and find a way to cope with it, to accept it, that's all I'm asking for here, just give me some time to deal with and accept this.

Comments

You sound better. I am glad. See, I told you things would get beter:) One day were are gonna do lunch!

I'm glad things went better today. And that you found someone who listened and gave you positive input. I hope things go well with you boys as well, I will keep you in my thoughts and hope things go well for you... HUGS

Sorry that all this went down when you were already hurting so bad. I'm glad you found someone that understands that you need the pain medicine to function. It is also good that you are going to be seeing someone to talk to about how you feel. I hope this helps with other peoples opinions about what is best for you. They may think that they know what is best for you, but only you can decide what is best for you. I'm keeping you in my thoughts and wishing you the best.

Kat,
I've been reading what you've been saying, and just haven't known what to even say back. I'm not in your shoes and I'm not in your situation, so I can't even begin to imagine what you go through or what your life is like. But I do know that I do not now, nor have I ever judged you. Yes, you are a strong person, but even strong people can fall apart. You've had a plan in place for a while now, and the reality of that plan not coming to life has to be one of the most difficult things ever. I know that I'm not "around" like I used to be, but please don't ever, not for a second, hesitate to let me know if you need someone to talk to! Send me a ranting email just to get shit off your mind and tell me not to answer back if that's what you want. Email me your phone number and I'll call you if that's what you want. But just know that no matter what, I think you are a wonderful person who does the best that you can do with what life has handed you. Know that I'm just an email away if necessary!

I don't care what people THINK they may know. If they haven't walked a mile in your shoes they have no right to assume what is best for you. Mentally or physically. I am a firm believer that things happen for a reason. It may have been an ultimatum that made you do something that you initially did not want to do but I think it was exactly what you needed. So you may want to thank them for that and revel in the fact that Karma came full circle because the result was not what they were anticipating. You are going to come out of this a much stronger and confident person. And in reality when thinking about the loss of life you are struggling with, just think about what the alternative would have been....That speaks volumes Kat.
Your sons may feel like a lot was put upon their shoulders.. And they are right... but that is in no way your fault. It was never your fault. Being at fault means you would have intentionally brought upon yourself all the medical hoopla that you were plagued with since the day you were born. You simply can not take the blame for something that you could not have controlled.

I am SO glad that the counselor was someone who listened, didn't put you down for your atheism, and didn't judge you in any other way. This was exactly what you needed, and what I was SO hoping for.

Kat, you have been there for me over all of the shit with Mike, and I want to be here for you now. We're going away for the weekend, but if you want to talk, you can either call my cell or DM me on Twitter.

I am glad that things seem more hopeful. It sounds like you are doing the exact right thing for yourself and your boys.

Kat,
I have only just now read the last couple of posts. I'm so sorry you're having such an awful time right now. I have to agree with the commenters who have said that if people haven't walked a mile in your shoes they do not know what it is like for you and therefore have no right to assume what is best for you.

I'm glad you've found someone to talk to. You're amazingly strong, but this is something no-one should have to go through alone.

Please remember that there are people here thinking about you, caring about you. I can't do much all the way from here, but I'm sending you good thoughts and hugs.

Kat, Just like Kirsi I have only just read the last couple of posts. I'm so happy to hear you have found someone who can truely hear you. I too am far away, like Holly, but I also work for an airline and would be proud to be part of any team to help in any way you can think of.

Hi Kat,
I am sorry your sons said that they hated you for that. I took care of my mom and little brother 8 years younger than I was. I missed out on some high school stuff. I sometimes got angry but never towards my mom. She had guilt though. She would get angry about something and all this guilt would come out. My birth father is a drug addict criminal. She would get angry about something and yell at me about him being gone and her being in such pain she couldn't do anything. I was a teen and I didn't understand all I could say was "I never said it was your fault, I never blamed you." From your post you helped me understand her guilt. If your sons haven't said it yet to you "This isn't your fault, you didn't do anything wrong". Your sons might have so much anger now but what they don't realize is the anger isn't towards you it is towards your pain. It might also be that when you are in so much pain it hurts them because they love you. It was how I felt "Her pain hurt my heart because I couldn't make it better all I could do was handle the household so she could have SOME piece of mind." They missed a lot and so did you. They cannot possibly be angry at you because you didn't do anything to them. Your pain has caused all of the hurt they are holding on to, it is just being directed at you. When they mature they will understand. Even though you will always look down, when your pain is under control they will see a new mom (or the old one re-emerged). It will not be exactly how it was when they were kids but it will be better then it has been. I appreciate going to the store with my mom just talking and getting groceries. I appreciate that she can talk to me on the phone. I appreciate the small things she can now do for me which she couldn't for so many years. I think they will too. They should be proud for stepping up and taking care of things because when times are hard that is what you have to do. Things get stressful they seem overwhelming for everyone involved but they will be so strong because of it, they just don't know it yet. I am proud of seeing my mother through her hard times to the better, I am a strong woman because of the fact that I did. I know what is important in life. I know what matters to me the most which are the people in my life. Your sons will have a close bond as well. My brother and I fought when he was a bratty kid that didn't want to listen to his big sister but he is an adult now and we are so close. I know this is long but I want to share with you from a child of someone that suffers chronic pain. If you would like to e-mail me feel free or if you think your sons might want to e-mail with someone that lived what they are living please feel free to do that as well. Have faith (not in a higher power) but in the fact that you raised good boys that are just overwhelmed men right now.

I had no idea that things were this bad. I'm sorry for not reaching out to you by email. I'll see if I can find your phone number and give you a call. I'm a good listener IF you are up to talking.


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